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An Aucklander who has a rare genetic disorder says moving her family to Australia last week was her only option to access a life-changing drug. Fiona Tolich, 42, has fought for years to get Pharmac to fund the drug Spinraza and has been a leading patient advocate for spinal muscular atrophy (SMA) sufferers in Aotearoa. She said being able to access Spinraza in Australia would allow her to maintain her existing quality of life.

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